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Alzheimer's Disease
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Their Real Worldä

Creating Sensitivity to Alzheimer s

Successful Interventions for Challenging Behaviors

AND the reasons why

How would you feel if your son or daughter, or your wife or husband, or a

total stranger:

·         Followed you into the bathroom each time you went?

·         Cut up the meat on your plate?

·         Tried to undress you for bed?

·         Didn t let you go anywhere alone?

·         Told you it was time to take your shower?

·         Stopped you from going out the door?

·         Are always telling you what to do?

That s how a person with Alzheimer s Disease feels.

WHY? Because THEY do not know that they have a dementia, and

they cannot understand why YOU are behaving this way with them.

The care partner must keep in mind, that people who are more progressed in their dementia do not realize that they lack the ability to do the things they use to do, or that they now have poor safety awareness. Try as they may and due to the progressive nature of their dementia, they are no longer able to comprehend these things these changes in their life. This causes them to feel increased confusion, frustration and fear.

These EMOTIONS that they feel, for whatever reason, are the cause of challenging behaviors. Think about the different behaviors you encounter as their care partner .

Definition of Intervention: to occur between points of time;

to come in or between in order to stop, settle or modify

  1. Be Proactive: Preventative

Know their history. What do they like and dislike. What was their regular routine. What are their favorite things AND what are the things they like the least. Know or learn what works for this person and what doesn t work.

  • Who, What and Where causes them to feel safe, happy and content?
  • Who, What and Where causes them to feel anxious, upset and frightened?

In example: If your person with dementia is a Sun-downer [becoming anxious/agitated usually in late afternoon and the evening hours] and you already know this, then a plan should already be in place for this person before the sun-downing behavior occurs. Whether it be their favorite music, game or movie or a task that makes them feel productive and useful, the activity should begin at least fifteen minutes before the known time of the behavior. This is being proactive and protecting them from the negative emotions they would have otherwise felt.

  1. Validation: Supportive

Validate the way they feel. Although the care partner may not always understand why this emotion is occurring, if the person with dementia is angry or upset do not tell them not to be or that everything is just fine. These are normal emotions that we all feel for whatever reason at that particular time. It may well be the accumulation of many little frustrations.

In example: Tell them you are sorry that they feel sad or upset or that you don t blame them for feeling angry, give them a reassuring hug, or simply tell them with your facial expression or body language that you understand. Give them a few minutes to vent, or cry and then encourage them toward a more positive place, something they enjoy or find comfort in, [activity/task, snack, song] without bringing up the past emotion again.

·         Allow them to feel that their thoughts and feelings are valid and do matter to you.

·         Listen to them, reassure them; be there for them in that moment

  1. Positive Emotion: Feelings

Consciously encourage positive emotion. Negative feelings of confusion, fear and frustration will typically remain due to the nature of the disease/dementia, but everything else in their environment, in their world, should convey something positive or pleasing to them.

In example: We have virtual control over their immediate environment and everything in it should be pleasant and non-intimidating to them. Encourage yourself to have increased awareness of what they see, hear smell, taste and touch. Ask yourself: Can I make this better more positive for her/him?

·         Purposefully promote positive emotion and purposefully avoid negative emotion. Smile, compliment, tell them you missed them or that it s so good to see them.

·         The care partner should make every attempt to make the person with dementia feel respected & normal, useful & content, safe & reassured, loved & wanted and very, very special.

Enter Their World: Communicate with them through their eyes and not yours. They live in their new world of dementia and they re not coming back to ours, as we know it.

Address their need: Their behavior has a reason behind it. Consider and/or recognize what their need may be. Is it: Emotional [i.e. sad, bored, afraid etc.], Physical [i.e. thirsty, cold, tired etc.], Environmental/Sensory [i.e. noise, light, the conversation etc.].

Ask yourself How would I feel? :

How might you feel if you had to face the daily confusion and uncertainty of dementia? What emotions would build within you if your needs were not known, met or addressed?

What behaviors would we exhibit as a means to convey our frustration in trying to get someone, anyone, to understand what we re trying to say or explain?

That s how people with Alzheimer s & Dementia feel too.

Mal @TheirRealWorld.com

ãTRW2007

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